OD4RD

1. Why ORPHAcoding RD diagnosis vs other generic terminologies WHY ORPHAcoding vs Other Terminologies_VF.pdf. This document is also available in Spanish Spanish_WHY ORPHAcoding vs Other Terminologies_VF.pdf
2. Making IT easy Flyer. This document is also available in Spanish ORPHAcodes-IT_Flyer_ES.pdf
3. What is the Network of Orphanet Nomenclature National Hubs What is the ORPHANET Network of National hubs Flyer_final-3.pdf & 2024 National Hubs AchievementsCopie de Achievements_ORPHANET Network of National hubs Flyer_final (1080 x 1350 px).pdf. Also by country flyers are available: Austria AT_ONNH_Flyer2025.pdf Belgium ORPHANET_Network_National_Hub_2025_BE-fr.pdf & ORPHANET_Network_National_Hub_2025_BE-nl.pdf Bulgaria ORPHANET_Network_National_Hub_2025_BG.pdf Finland ORPHANET_Network_National-Hub_2025_FI.pdf Germany ORPHANET_Network_National-Hub_2025_DE.pdf Ireland ORPHANET_Network_National-Hub_2025_IE.pdf Italy Flyer_Orphanet_National_Hub_2025_IT.pdf the Netherlands ORPHANET_Network_National-Hub_2025_NL.pdf NorwayORPHANET Network of National hubs Flyer_2025_NO.pdf Portugal ORPHANET Network of National hubs Flyer_final_PT.pdf Poland ORPHANET Network of National hubs Flyer_2025_PL.pdf Romania ORPHANET_Network_National-Hub_2025_RO.pdf Spain ORPHANET_Network_National_Hub_2025_ES.pdf Sweden ORPHANET_Network_National-Hub_2025_SE.pdf & Switzerland ORPHANET_Network_National-Hub_2025_CH.pdf
4. OD4RD: 2023 Achievements leaflet OD4RD-achievements booklet.pdf. Also available in Spanish :OD4RD-achievements booklet_ES.pdf
5. OD4RD2 General Public Progress report: OD4RD_ProjectProgress_GP-Report_2025.pdf

Dissemination You can check our planned deliverables here: https://od4rd.eu/03-deliverables

1. Tackling the invisibility of RD in European Member States: the OD4RD project contribution, ECRD 2024 Poster ECRD2024_Poster_OD4RD_VFF.pdf
2. Tackling the invisibility of RD in European Member States: the OD4RD project contribution: abstract submitted to Special Supplement of The Orphanet Journal of Rare Diseases (OJRD) featuring abstracts from speakers and top scoring poster presenters at the ECRD 2024 hybrid conference
3. ORPHAcodes Implementation Use cases: Germany, France, the Netherlands & Norway OD4RD2_Use-Cases_OC-Implementation-DE-FR-NL-NO_2024.pdf
4. OD4RD2 Technical workshop Report: OD4RD2_Technical-Workshop_181224_ReportVF.pdf
5. OD4RD2 Whitepaper: Semantic interoperability of data on rare diseases - ORPHAcodes as part of the coding system landscape OD4RD2 MS 15 White Paper_final-V02.pdf
6. OD4RD2 Presentation at The First Meeting of Hospital Managers of ERNs (HMAGs) and Representatives of National Policy Contact Points (NPCPs) organised by JARDIN OD4RD2_sHCP-NCPday_Vf.pdf
7. ORPHAcodes bibliography: https://od4rd.eu/orphacodes-bibliography