Communication & Dissemination Material
- Why ORPHAcoding RD diagnosis vs other generic terminologies WHY ORPHAcoding vs Other Terminologies_VF.pdf. This document is also available in Spanish Spanish_WHY ORPHAcoding vs Other Terminologies_VF.pdf
- Making IT easy Flyer. This document is also available in Spanish ORPHAcodes-IT_Flyer_ES.pdf
- What is the Network of Orphanet Nomenclature National Hubs What is the ORPHANET Network of National hubs Flyer_final-3.pdf & 2024 National Hubs AchievementsCopie de Achievements_ORPHANET Network of National hubs Flyer_final (1080 x 1350 px).pdf. Also by country flyers are available: Austria AT_ONNH_Flyer2025.pdf Belgium ORPHANET_Network_National_Hub_2025_BE-fr.pdf & ORPHANET_Network_National_Hub_2025_BE-nl.pdf Bulgaria ORPHANET_Network_National_Hub_2025_BG.pdf Finland ORPHANET_Network_National-Hub_2025_FI.pdf Germany ORPHANET_Network_National-Hub_2025_DE.pdf Ireland ORPHANET_Network_National-Hub_2025_IE.pdf Italy Flyer_Orphanet_National_Hub_2025_IT.pdf the Netherlands ORPHANET_Network_National-Hub_2025_NL.pdf NorwayORPHANET Network of National hubs Flyer_2025_NO.pdf Portugal ORPHANET Network of National hubs Flyer_final_PT.pdf Poland ORPHANET Network of National hubs Flyer_2025_PL.pdf Romania ORPHANET_Network_National-Hub_2025_RO.pdf Spain ORPHANET_Network_National_Hub_2025_ES.pdf Sweden ORPHANET_Network_National-Hub_2025_SE.pdf & Switzerland ORPHANET_Network_National-Hub_2025_CH.pdf
- OD4RD: 2023 Achievements leaflet OD4RD-achievements booklet.pdf. Also available in Spanish :OD4RD-achievements booklet_ES.pdf
- OD4RD2 General Public Progress report: OD4RD_ProjectProgress_GP-Report_2025.pdf
Dissemination You can check our planned deliverables here: https://od4rd.eu/03-deliverables
- Tackling the invisibility of RD in European Member States: the OD4RD project contribution, ECRD 2024 Poster ECRD2024_Poster_OD4RD_VFF.pdf
- Tackling the invisibility of RD in European Member States: the OD4RD project contribution: abstract submitted to Special Supplement of The Orphanet Journal of Rare Diseases (OJRD) featuring abstracts from speakers and top scoring poster presenters at the ECRD 2024 hybrid conference
- ORPHAcodes Implementation Use cases: Germany, France, the Netherlands & Norway OD4RD2_Use-Cases_OC-Implementation-DE-FR-NL-NO_2024.pdf
- OD4RD2 Technical workshop Report: OD4RD2_Technical-Workshop_181224_ReportVF.pdf
- OD4RD2 Whitepaper: Semantic interoperability of data on rare diseases - ORPHAcodes as part of the coding system landscape OD4RD2 MS 15 White Paper_final-V02.pdf
- ORPHAcodes bibliography: https://od4rd.eu/orphacodes-bibliography