The project has 2 Boards in place:

The DATA ADVISORY BOARD (DAB)

Composition: ECHO representative, EJP-RD representative, X-eHealth, eHDSI

Scope: provide strategic views on the project, and ensure alignment of this project with the main European data initiatives as well as with ERNs national implementation strategies. Meeting: virtually once a year. Terms of Reference available here:OD4RD_ToR_DAB.pdf

The ERN ADVISORY BOARD

Composition: coordinators, or representatives designated by them(call for participation in this project done at the time of the proposal submission): ERN-BOND, Endo-ERN, ERK-net, CRANIO, EURACAN, EuroBloodNet, eUROGEN, ERN-EYE, GENTURIS, GUARD-HEART, EpiCare, ITHACA, ERNICA, RARE LIVER, LUNG, ReCONNET, RITA, ERN-RND, ERN-SKIN, TRANSPLANT-Child, MetabERN, VASCERN. Additional members can be included ! Scope: support OD4RD in its activities, advising on action plans. Meetings: Members will be invited project’s meetings as appropriate, according to budget provisions. Terms of reference available here: OD4RD_ToR_EAB_VF.pdf